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SOLAR ECLIPSE: CHAPTER 31

 

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Once in a great while the sun and the moon align in a total solar eclipse and the stars uncross and the fates smile and, like a miracle from the hand of a savior, I am able to stand and to walk on my very own. I am able to laugh and tell jokes and drink juice and taste food without getting sick.

These are not the days when sickness is almost out of my body. These are the days when the cure almost is.

On the days when the chemo is nearly out-processed and I am beginning to get my thoughts back in order and the soft mush that is my brain is beginning to firm up, it is these two or three days before going back to the hospital that I must take advantage of my circumstances.

As my wife helps me bundle up in my full arctic wear, complete with scarf, I notice that the clock reads 6:15 p.m. I know we need, need, need to be home by 9 o’clock at the very absolute latest because, no matter how good I currently feel (relatively speaking), I won’t make it to 9:15 p.m. Quarter after rolls around and I will, home or not, be dead to the world. My carriage will turn back into a pumpkin and my clarity will turn back to pay-per-view static. Goodbye, world. Au revoir. Adios. Time to sleep.

Jade unlocks the car and I fall into the passenger seat and turn the radio on, letting music quietly fill the air.

I miss it so much. Of all the superficial things, I miss music the most. I can hear the raspy voices of Kurt Cobain, Frank Black, and Isaac Brock coughing out lyrics in my furthest memories, but it’s like listening to them through a joint wall shared by a neighbor in a duplex.

Bad news comes, don’t you worry

Even when it lands

Good news will work its way to all them plans

Jade cranks the key, slams the gear shift, and punches the gas and then we’re off like a herd of turtles, gently coasting down the streets of The Valley, navigating through streets with powerful names like Victory, beautiful names like Magnolia, and disgusting names like Cumpston. We pull onto the freeway and the night envelops us, pulling our automobile into her black cloak and then, at 80 miles per hour, a song by Rage Against the Machine begins to wah-wah out of the radio and Zack de la Rocha’s voice suddenly reminds me of how this all started; me blasting through the desert to Vegas, alone, hungry for drugs and alcohol. Me with a couple hundred bucks on fire in my pocket. Me with my invincible bullshit attitude and . . . I hate that guy. It’s only been three months but I don’t recognize him and I can no longer relate.

The things that guy wants are moot. His desires are dead. I don’t feel remorseful or sorry. I don’t mourn his loss but secretly celebrate it, wondering who this new skin will shape up to be once it gets to crawl out and spread its wings. How will his brain think? How will his heart feel? What will his soul search for?

Only time will tell but tonight his soul searches for Mexican food in the flavor of a little restaurante in Westwood. Some friends of ours had called us a few weeks back, requesting a dinner date and my wife tells them, “Yes! Perfect! We’d love to see you!” and they had said, “How’s 7:30?” and Jade had answered with, “Perfect. How is nineteen days from now? Johnny should be in some kind of working order by then.”

The silence on the other end of the phone lasts for a few moments before my friend’s wife says, “I’ll have to check the calendar . . . yes? Maybe?” I have nothing to do and no time to do it in. My life is a blank page that I can’t read. My days are newspaper articles written in Cantonese. My nights are like iPods with no headphones. I am existing without being operational. Here I am, flesh and blood, present in time and space, but unable to be useful.

Jade pulls into the parking lot, gives the keys to the valet, and we both walk inside, she dressed up for a well-deserved night out, me looking like a homeless man trying to pass for “merely unemployed.” None of my clothes fit as I’m in the exact opposite stage that most pregnant women find themselves—too big to fit into their old clothes and just too depressed to go buy more because they know this season will be over soon and they can squeeze back into those old jeans and T-shirts.

In the meantime I look like that Fievel Mousekewitz character from An American Tale, oversized rags hanging from my body.

This is our first outing since The Beginning. This is the first time we’ve been out of the house to somewhere that was not directly related to Cancer: hospital, clinic, marijuana dispensary, church. It’s also the first night that my wife and I have been away from my mother since she got here and it somehow feels like our little circle has been broken and one of our members is absent from a meeting.

We enter the warm building and find our friends, Killian and Emily, sitting on a small bench in the “Just Have a Seat” area. They approach and hug us, both of them dwarfing me, wrapping their average sized arms around my depleting frame and crushing the life from my bones. They say, “How are you?” and they say, “You look good,” and they say, “This place is our favorite,” and they say, “You really do look good . . . ” and I know that I look like an emaciated version of The Yellow Bastard from the popular graphic novel, Sin City.

The waiter points us to our table and we walk through the cramped spaces, navigating to our booth in a back corner. We sit down and I try to take it all in. I want to remember this. I know my time is almost up. The eclipse is almost over. My chariot will be a pumpkin before too long.

Strange hand-painted tribal masks hang along the walls the entire length of the restaurant—blue faces with white lips, orange faces with blue dots on the cheeks, black faces with red streaks running from the eyes, one hundred vacant expressions watching us from the walls.

I’m staring into one of these masks, getting lost in thought when I realize that a senorita is standing by my side taking drink orders. Like clockwork, all three guests—Killian, Emily, and Jade—order extra large margaritas. I smile. Even Jade is taking advantage of her own solar eclipse.

The waitress looks at me and says, “Margarita for you, sir?” and the thought of consuming salty alcohol makes me shiver. I say, “No, thank you. I’ll just have the, uh . . . ” and then I glance back at the menu, run my finger down their alcohol menu, stop on a random drink, look back up and say, “Milk, please,” and the waitress stares at me and says, “Milk. Like . . . a White Russian?” and I say, “No . . . like, two percent,” and Jade laughs because she knows it’s the only thing besides Gatorade that’s actually able to help soothe my stomach and sore throat. Killian says, “You can get a margarita. Dinner’s on us!” and I laugh and say, “Milk is fine. Thanks.”

Back around the table again, the waitress takes our meal orders. Killian gets a number 17 combination plate of four shrimp tacos, beans, rice, two enchiladas, and a side salad. Emily orders a number 4: smothered chicken burrito with a bowl of tortilla soup on the side and an appetizer of jalapeño poppers. Jade orders a number 11: two chicken enchiladas, two beef enchiladas, rice, beans, and two sides of her choice for which she requests double portions of corn cake. The waitress turns to me and I put down the menu, my mouth slavering from all the options and I say, “I would like . . . a taco, please,” and she says, “A taco meal?” and I say, “A . . . sorry. I would like one taco,” and then, just to add a little cultural flair I say, “Uno. Taco. Por favor.” And I know she doesn’t understand why I’m ordering so scarcely and I don’t feel like explaining the whole long story or even some shortened and bastardized version of the tale that goes something like, “I’m sick and tonight is my night to eat a delicious meal and I’m very excited but still, I’m sick and I can’t eat like a totally normal person. I still have to be aware and conscious because I am completely aware and totally conscious that I puke every single day, multiple times a day, and I am also aware and conscious that I am in a public establishment with my friends and family right now, a public establishment that is filled mostly with strangers, and I don’t want to vomit here. I don’t want to vomit on your table. I don’t want to vomit on your floor. I don’t want to vomit in front of my friends, next to their food, ruining their meals. I haven’t eaten much in the last few months and so my stomach has shrunk down to a fraction of its previous size. No longer a softball, it’s now a walnut.” Killian says, “You can order more. Dinner’s on us!” and I say, “One taco is all I need.”

I imagine taking them up on their offer and ordering a “regular portion” for the sake of being polite. I imagine it arriving, the plate overflowing with food, steaming with flavor, the waitress saying, “Careful, it’s hot,” as she sets it down on our table with pot holders. I imagine everyone grabbing their forks and digging in, ravaging their food, tearing apart those gummy enchilada rolls, shoveling refried beans into their mouths and slicing chicken and beef like butchers while I stare at my plate and eat half a taco before sliding the plate up and saying, “So good . . . so full . . . . ”

The waitress leaves and our pre-dinner conversation starts and I quickly realize just how out of the game I’ve been. They ask us if we’ve seen this show or that show and they ask us if we’ve seen this movie or that movie and they ask us if we’ve heard this news story or that news story and Jade reaches over, under the table, and squeezes my hand twice, gently, in a friendly manner and I know she’s thinking the same thing I am, which is, “I have no idea what is going on in the world.”

We’ve been so ingrained in our adventure, so zipped up in the body bag that is Cancer Life that the rest of the world has slowly passed us by. While we’ve been huddled around the fire, trying to stay warm, Wall Street has continued on, Hollywood has continued on, Earth has continued spinning and changing and growing.

The words that everyone speaks float from their mouths to my ears but die before they ever hit my brain. Everything feels superficial. Everything feels plastic and fake. Not my friends, not my wife, but our words. Hollywood and Wall Street. It all suddenly feels so . . . dirty. Everything feels so fleeting. When life and death are hanging in the balance, money quickly loses its value because you realize it can’t help you. It can’t buy you health. It can buy you healthy food and it can buy you good doctors but it can’t buy you health. Health, like respect, is earned.

A moment later a young man appears at our table holding a tray of drinks, a young man who is decidedly not the young woman who had originally taken our orders and so he is unsure exactly which margarita goes to which patron. He says, “Straw . . . berry?” and Emily raises her hand and he sets it down and says, “There you go . . . . Mango?” and Killian says, “Right here,” and reaches out and takes it from him and the waiter says, “Passion fruit?” and he looks at Jade and me and Jade smiles and says, “I’ll be taking that,” and then all of our eyes are resting on his tray where the only cup left is a tiny half-sized little sippy cup with a Styrofoam lid and a wacky bendy straw and the guy says, “Sorry, I . . . I thought this was for a kid,” and I say, “Yeah, that’s right. You better go put my drink in a big-boy glass.”

That night, on our drive home, I can feel the effects of our night out. My eyes are heavy, my arms are anchors, the weight of one taco pulling me down and drawing me into darkness. I fall asleep on the ride home and when I wake up I’m in my bed. The eclipse is over. The carriage is gone. Tomorrow it all starts over again.

Tomorrow is Round 3.

 

 

 

 

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INTERMISSION: CHAPTER 18

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I have spent my last half a week curled up in a ball trying to sleep away the days so that I could just hurry and get to my nights to sleep more. Vomiting has become as commonplace as blinking, and because personal hygiene is the very last thing on my mind, I haven’t showered or brushed my teeth in something like ninety-six hours.

I keep telling Jade that I’m sick and she keeps telling the nurse that I’m sick and the nurse keeps bringing nausea medication but it never works. It’s like taking Tylenol because your leg just got ripped off. The sickness has grown and amplified and magnified, no longer a harmless garden variety lizard but now a towering reptilian monster destroying various major cities that are, symbolically, each of my organs.

My “hangover” has matured into a full-fledged Death Bed Shutdown where I don’t feel pain; I am pain. It radiates from the center of my body, at a point where my ribs and lungs meet. I can feel my diaphragm; I can feel the meat and bone surrounding it. I can feel every inch of tissue, every cell, every strand of DNA, flowing with black hatred. My heart pumps blood and my stomach churns food and my lungs circulate oxygen and this spot in my chest produces pain, sending it out in waves, reaching into the furthest extremities of my limbs. My eyeballs throb and the light is blinding and sickening and overwhelming, every bright color a dart to the back of my skull. Every noise is sent through a megaphone placed against my ear. The television, the radio, the beeping of my IV machine, footsteps, toilets flushing, birds chirping, everything hits my brain like a bare-knuckled super soldier. Pliers twist and grind inside my head, and my stomach feels like an ocean filled with buttery fat, wave after wave of sloshy curdled goop washing onto my shores. I puke into the buttery waves and the world screams at me and the pain pinches my eyes and blasts through my body and I am on fire, filled with poison, my body shoving chemicals in and out, in and out, my liver screaming like a witch at the pyre.

 

The Black Tendrils are slowly dying, curling back like a rose bush in winter solstice, but a new monster is rising up, something worse than cancer, something without a face or a cure. Because it is the cure. This is not the cancer making me sick. This is the medicine making me sick.

I make earnest prayers to God to please just let me die. I am in so much pain. Every ounce of energy I have stored is being pulled away from me. Everything is a fight. Everything is a battle. Walking, talking, eating, chewing, shitting, blinking, breathing, it’s all one vicious fight after the next. My life is a Faces of Death segment played in super slow motion.

My stomach hurts so badly that I feel as though I can’t stand up. Every movement I make, no matter how small or subtle, upsets my senses like a boat in the ocean, capsizing it and drowning the crew. I lie as still as possible for as long as possible and think about how the doctor told me that the treatments will compound, that they’ll become worse every time.

This is just the beginning and I am at the end of my rope.

Never before or since have I felt such pain as that which plagued me through chemotherapy. I cry often and often I cry alone. I shut my eyes and see the flame of hope flickering, threatening to extinguish. The proverbial light at the end of the tunnel is far away, through a maze of subterranean tubes, and out of sight, out of mind. I’m in the desert and my ending is a slow burn. I can’t imagine ever coming out of this, ever being healthy, ever being unsick. I can’t see past the next moment in time, the next bag of chemo, the next dose of medicine. The pain builds and grows inside me with every passing moment, a thermometer rising, the mercury inside of it threatening to burst out in a spray of toxicity.

 

On Monday, I tell Jade that I want to die. On Tuesday, I repeat myself. On Wednesday, I say it again until I absolutely believe it. On Thursday, I just keep mumbling it over and over like a mantra, begging the darkness to swallow me up. Tiny violins play wherever I go. On Friday, Jade sits down next to me and says, “Is that really what you want? To die?” and I look at my feet, ashamed and feeling stupid all of a sudden. She repeats herself but I don’t answer. She tells me that I’m not going through this alone. She tells me that I’m not alone. She tells me—and I cut her off. I say, “I am alone. I’m the one in the hospital bed. I’m the one with the IV stuck in my arm. I’m the one with the pain in my bones and the fear in my brain—” and now it’s her turn to cut me off. She says, “You’re not going through this alone. You might be carrying the pain around but I’m twenty-four years old and I have to sit aside and watch my husband die . . . and the worst part is he’s just going right along without even swinging a punch. Where’s your fight?” and then she lets that thought hang in the air like rotten fruit.

She takes my hand in hers and rubs her thumb along the ridge of my plain, gold wedding band. “It’s loose,” she says, and I look down. Even my fingers are losing weight. I shrug. She slides my ring off my finger and silently reads the inscription that runs around its inside, hidden from view. She laughs and says, “I remember when I took this ring to the jeweler to have it engraved. There was a really old woman behind the counter and she told me to write down exactly, exactly what I wanted it to say. When I handed her the paper, her face,” Jade laughs. “Her mouth dropped open and her eyes popped out and she goes, ‘Is this a joke?’ And I say, ‘Nope.’ And the woman says, ‘This is for a wedding ring?’ and I told her it was for my husband to-be. She had this look that was like, Young people . . . . “Then,” she continues, “I remember on our wedding day, we walked down the aisle, just married and, in the backroom, waiting to be announced outside for the rice throwing, I told you to take it off and read it. Do you remember?”

 

And yes, I do remember. I gave it a tug and it came off easy that day, as well, from my nervous-sweaty hands. I held the shining circle up to the light, tilted it just so and read the following words, laid out in all caps: WE’RE NOT GONNA MAKE IT.

If I had any doubts about marrying the right girl, they vanished right there.

Jade now, in real time, in the hospital, three years into our marriage, slides the ring back onto my finger and says, “We are going to make it. Both of us. You stop telling yourself otherwise.”

I say, “OK,” and, “I know,” and, “You’re right,” and, while I quit saying those things and while I try hard to stop thinking them, they still rattle around in the dark recesses of my brain, cluttering it and infecting it.

I reach my hand out and hold hers, rubbing my thumb against the back of her palm until the nurse enters to remove my IV because, thank God so very, very much, today is the day we’re leaving.

The nurse at hand struggles with removing the IV thanks to the massive amounts of tape that had been used to set it to my arm. She apologetically pulls and tugs at the sticky material, tearing out countless arm hairs while ruthlessly jerking the catheter tube that rests in my vein in and out, in and out. I bite my bottom lip and my eyes pinch shut. The nurse picks at the tape with her fingernail and rips another strip off with a drawn out, “Sohhhhh-ryyyyy,” and a grimace.

 

When she finally manages to pull out the tube, I experience a sensation that I can only equate to that which you feel after jumping off of a trampoline, the way the ground feels foreign and strange. After eight days of the constant tug of the pole and tubes I feel like a part of me is missing.

By policy I’m not allowed to walk to the exit myself so I’m asked to sit in a wheelchair while my wife escorts me. I feel humiliated every time we pass someone in the hall even though I know the emotion is stupid and senseless.

One week after beginning my six-month treatment, I am released from the hospital and allowed to go home for an intermission—two weeks of down time before I return for my second interval.

When we get in the car, I lie down in the backseat and shut my eyes. On the forty-minute drive home I feel every single bump in the freeway, every pothole, every stomp of the brake. I feel everything, my senses not numbed but amplified. I am a glass of liquid, waiting to spill.

I ask Jade to turn down the music and she does but then I ask her to shut it off completely. I put my hands over my ears and can’t imagine this getting any worse. I ask her to pull over and I puke into the gutter twice.

We get home and I sit down in a soft yellow rocking chair, a piece of furniture that my wife and I found abandoned under a bridge when we first moved to LA. It seemed like it was in good enough condition so we brought it home.

 

Like a good dog, it’s been well loved.

Severe chills run up and down my body so I put on a thick hoodie, pull up the hood and give the strings a good tug, scrunching my field of vision. I shut my eyes and try to sleep but to no avail.

My mom asks if we feel like playing that popular board game Sorry! and my wife says sure and I say nothing but sit at the table and stare at the board. I roll the die—

—die—

—and move my marker and roll my die and move my marker and die and Cancer Marker.

I sit back in my chair and Jade asks what I want for dinner and I tell her I’m not hungry. My stomach hurts. I puke again, this time simply at the thought of food being placed on my tongue.

The hospital has sent us home with a small suitcase filled with pharmaceuticals: two kinds of anti-nausea pills, several pain relievers for head, several pain relievers for body, stool softeners because the pain relievers cause constipation; vitamins A through F, K through P and R, V and Z individually. My mother has also personally prescribed fish oil and ginkgo biloba, which I think is for memory loss but I can’t exactly recall.

Lying in bed that night, I stare at the fan blades spinning round and wonder how many times they’ve turned since I’ve lived in this house. Ten thousand? A hundred thousand? I start counting but only get to seven when my wife reaches over and gives me a kiss on my cheek.

 

I turn to her and she says, “Hey,” and I say, “Hey,” and, because I realize that I still haven’t brushed my teeth in over a week now, I sort of avert my mouth.

She places her hand on my stomach and says, “Hey,” and raises an eyebrow and I say, “Uh . . . ” and, even though I’ve promised myself to “be strong” the thought that keeps rolling through my head is, “I just want to die, I just want to die, I just want to die,” but instead I say, “Is this, like, sympathy sex?” and she laughs and says that she digs guys with cancer.

I smile and give her a kiss on the cheek and we try our very best but the entire time I’m just fighting my gag reflex from the constant rocking and my bones feel like they’re going to crumble and for some reason I keep picturing my dick as raw butcher meat and I am just totally worthless and there’s no way this is happening.

Cancer: the ultimate cock block.

I eventually say, “I . . . I can’t do this,” and lie back on the bed and say, “Sorry,” and she says, “It’s OK, I’m really into guys that are emotionally and physically damaged.”

We hold hands and I tickle her back and she goes to sleep and I continue to count, “Eight . . . nine . . . ten . . . .”

 

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