Tag Archives: Jade Brookbank

INTERMISSION: CHAPTER 18

cancer_title_page18

 

I have spent my last half a week curled up in a ball trying to sleep away the days so that I could just hurry and get to my nights to sleep more. Vomiting has become as commonplace as blinking, and because personal hygiene is the very last thing on my mind, I haven’t showered or brushed my teeth in something like ninety-six hours.

I keep telling Jade that I’m sick and she keeps telling the nurse that I’m sick and the nurse keeps bringing nausea medication but it never works. It’s like taking Tylenol because your leg just got ripped off. The sickness has grown and amplified and magnified, no longer a harmless garden variety lizard but now a towering reptilian monster destroying various major cities that are, symbolically, each of my organs.

My “hangover” has matured into a full-fledged Death Bed Shutdown where I don’t feel pain; I am pain. It radiates from the center of my body, at a point where my ribs and lungs meet. I can feel my diaphragm; I can feel the meat and bone surrounding it. I can feel every inch of tissue, every cell, every strand of DNA, flowing with black hatred. My heart pumps blood and my stomach churns food and my lungs circulate oxygen and this spot in my chest produces pain, sending it out in waves, reaching into the furthest extremities of my limbs. My eyeballs throb and the light is blinding and sickening and overwhelming, every bright color a dart to the back of my skull. Every noise is sent through a megaphone placed against my ear. The television, the radio, the beeping of my IV machine, footsteps, toilets flushing, birds chirping, everything hits my brain like a bare-knuckled super soldier. Pliers twist and grind inside my head, and my stomach feels like an ocean filled with buttery fat, wave after wave of sloshy curdled goop washing onto my shores. I puke into the buttery waves and the world screams at me and the pain pinches my eyes and blasts through my body and I am on fire, filled with poison, my body shoving chemicals in and out, in and out, my liver screaming like a witch at the pyre.

 

The Black Tendrils are slowly dying, curling back like a rose bush in winter solstice, but a new monster is rising up, something worse than cancer, something without a face or a cure. Because it is the cure. This is not the cancer making me sick. This is the medicine making me sick.

I make earnest prayers to God to please just let me die. I am in so much pain. Every ounce of energy I have stored is being pulled away from me. Everything is a fight. Everything is a battle. Walking, talking, eating, chewing, shitting, blinking, breathing, it’s all one vicious fight after the next. My life is a Faces of Death segment played in super slow motion.

My stomach hurts so badly that I feel as though I can’t stand up. Every movement I make, no matter how small or subtle, upsets my senses like a boat in the ocean, capsizing it and drowning the crew. I lie as still as possible for as long as possible and think about how the doctor told me that the treatments will compound, that they’ll become worse every time.

This is just the beginning and I am at the end of my rope.

Never before or since have I felt such pain as that which plagued me through chemotherapy. I cry often and often I cry alone. I shut my eyes and see the flame of hope flickering, threatening to extinguish. The proverbial light at the end of the tunnel is far away, through a maze of subterranean tubes, and out of sight, out of mind. I’m in the desert and my ending is a slow burn. I can’t imagine ever coming out of this, ever being healthy, ever being unsick. I can’t see past the next moment in time, the next bag of chemo, the next dose of medicine. The pain builds and grows inside me with every passing moment, a thermometer rising, the mercury inside of it threatening to burst out in a spray of toxicity.

 

On Monday, I tell Jade that I want to die. On Tuesday, I repeat myself. On Wednesday, I say it again until I absolutely believe it. On Thursday, I just keep mumbling it over and over like a mantra, begging the darkness to swallow me up. Tiny violins play wherever I go. On Friday, Jade sits down next to me and says, “Is that really what you want? To die?” and I look at my feet, ashamed and feeling stupid all of a sudden. She repeats herself but I don’t answer. She tells me that I’m not going through this alone. She tells me that I’m not alone. She tells me—and I cut her off. I say, “I am alone. I’m the one in the hospital bed. I’m the one with the IV stuck in my arm. I’m the one with the pain in my bones and the fear in my brain—” and now it’s her turn to cut me off. She says, “You’re not going through this alone. You might be carrying the pain around but I’m twenty-four years old and I have to sit aside and watch my husband die . . . and the worst part is he’s just going right along without even swinging a punch. Where’s your fight?” and then she lets that thought hang in the air like rotten fruit.

She takes my hand in hers and rubs her thumb along the ridge of my plain, gold wedding band. “It’s loose,” she says, and I look down. Even my fingers are losing weight. I shrug. She slides my ring off my finger and silently reads the inscription that runs around its inside, hidden from view. She laughs and says, “I remember when I took this ring to the jeweler to have it engraved. There was a really old woman behind the counter and she told me to write down exactly, exactly what I wanted it to say. When I handed her the paper, her face,” Jade laughs. “Her mouth dropped open and her eyes popped out and she goes, ‘Is this a joke?’ And I say, ‘Nope.’ And the woman says, ‘This is for a wedding ring?’ and I told her it was for my husband to-be. She had this look that was like, Young people . . . . “Then,” she continues, “I remember on our wedding day, we walked down the aisle, just married and, in the backroom, waiting to be announced outside for the rice throwing, I told you to take it off and read it. Do you remember?”

 

And yes, I do remember. I gave it a tug and it came off easy that day, as well, from my nervous-sweaty hands. I held the shining circle up to the light, tilted it just so and read the following words, laid out in all caps: WE’RE NOT GONNA MAKE IT.

If I had any doubts about marrying the right girl, they vanished right there.

Jade now, in real time, in the hospital, three years into our marriage, slides the ring back onto my finger and says, “We are going to make it. Both of us. You stop telling yourself otherwise.”

I say, “OK,” and, “I know,” and, “You’re right,” and, while I quit saying those things and while I try hard to stop thinking them, they still rattle around in the dark recesses of my brain, cluttering it and infecting it.

I reach my hand out and hold hers, rubbing my thumb against the back of her palm until the nurse enters to remove my IV because, thank God so very, very much, today is the day we’re leaving.

The nurse at hand struggles with removing the IV thanks to the massive amounts of tape that had been used to set it to my arm. She apologetically pulls and tugs at the sticky material, tearing out countless arm hairs while ruthlessly jerking the catheter tube that rests in my vein in and out, in and out. I bite my bottom lip and my eyes pinch shut. The nurse picks at the tape with her fingernail and rips another strip off with a drawn out, “Sohhhhh-ryyyyy,” and a grimace.

 

When she finally manages to pull out the tube, I experience a sensation that I can only equate to that which you feel after jumping off of a trampoline, the way the ground feels foreign and strange. After eight days of the constant tug of the pole and tubes I feel like a part of me is missing.

By policy I’m not allowed to walk to the exit myself so I’m asked to sit in a wheelchair while my wife escorts me. I feel humiliated every time we pass someone in the hall even though I know the emotion is stupid and senseless.

One week after beginning my six-month treatment, I am released from the hospital and allowed to go home for an intermission—two weeks of down time before I return for my second interval.

When we get in the car, I lie down in the backseat and shut my eyes. On the forty-minute drive home I feel every single bump in the freeway, every pothole, every stomp of the brake. I feel everything, my senses not numbed but amplified. I am a glass of liquid, waiting to spill.

I ask Jade to turn down the music and she does but then I ask her to shut it off completely. I put my hands over my ears and can’t imagine this getting any worse. I ask her to pull over and I puke into the gutter twice.

We get home and I sit down in a soft yellow rocking chair, a piece of furniture that my wife and I found abandoned under a bridge when we first moved to LA. It seemed like it was in good enough condition so we brought it home.

 

Like a good dog, it’s been well loved.

Severe chills run up and down my body so I put on a thick hoodie, pull up the hood and give the strings a good tug, scrunching my field of vision. I shut my eyes and try to sleep but to no avail.

My mom asks if we feel like playing that popular board game Sorry! and my wife says sure and I say nothing but sit at the table and stare at the board. I roll the die—

—die—

—and move my marker and roll my die and move my marker and die and Cancer Marker.

I sit back in my chair and Jade asks what I want for dinner and I tell her I’m not hungry. My stomach hurts. I puke again, this time simply at the thought of food being placed on my tongue.

The hospital has sent us home with a small suitcase filled with pharmaceuticals: two kinds of anti-nausea pills, several pain relievers for head, several pain relievers for body, stool softeners because the pain relievers cause constipation; vitamins A through F, K through P and R, V and Z individually. My mother has also personally prescribed fish oil and ginkgo biloba, which I think is for memory loss but I can’t exactly recall.

Lying in bed that night, I stare at the fan blades spinning round and wonder how many times they’ve turned since I’ve lived in this house. Ten thousand? A hundred thousand? I start counting but only get to seven when my wife reaches over and gives me a kiss on my cheek.

 

I turn to her and she says, “Hey,” and I say, “Hey,” and, because I realize that I still haven’t brushed my teeth in over a week now, I sort of avert my mouth.

She places her hand on my stomach and says, “Hey,” and raises an eyebrow and I say, “Uh . . . ” and, even though I’ve promised myself to “be strong” the thought that keeps rolling through my head is, “I just want to die, I just want to die, I just want to die,” but instead I say, “Is this, like, sympathy sex?” and she laughs and says that she digs guys with cancer.

I smile and give her a kiss on the cheek and we try our very best but the entire time I’m just fighting my gag reflex from the constant rocking and my bones feel like they’re going to crumble and for some reason I keep picturing my dick as raw butcher meat and I am just totally worthless and there’s no way this is happening.

Cancer: the ultimate cock block.

I eventually say, “I . . . I can’t do this,” and lie back on the bed and say, “Sorry,” and she says, “It’s OK, I’m really into guys that are emotionally and physically damaged.”

We hold hands and I tickle her back and she goes to sleep and I continue to count, “Eight . . . nine . . . ten . . . .”

 

Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,

SURGERY: CHAPTER 13

 

 

cancer_title_13

We drive to the hospital on a Friday morning for my out-patient surgery. I always assumed that, when the time finally came, I would be considerably more depressed or mournful. But instead, there is a freedom that is both liberating and intoxicating in the air. I’m just happy that this will soon be over. Today.

Take my nut. Just save my life. Take the poison before it spreads.

As I sit in the waiting room, no thoughts of hormone supplements cross my mind. The word eunuch never enters my brain. The only thing I can think about right now, the only impending doom I can imagine, the enormous, inevitable snowball that’s rushing toward the small village that is my psyche, is the thought of the IV.

But, thankfully, I tell myself, it’s the last one for a long, long time. “Just get through this one and you’re good. You’re gold. You can do it.”

On the television in the waiting room is a talk show where the special guest is a young musician speaking about coffee enemas. I stand up and turn the TV off just as a nurse calls my name.

My testicle leaps nervously into my stomach and it feels like it’s trying to give me one last hug. I say, “I hate goodbyes,” but it won’t let go.

The nurse leads my wife and I into a cream-colored room and instructs me to put on The Gown. When I come out of the bathroom, dressed for surgery, she’s ready to stick me with the IV and for some reason I feel like this is The Line. I feel as though, at any point before the IV, I was free to turn around and run away and lead a life anyway I chose, but the IV . . . . It represents a kind of umbilical cord to the hospital. Like red vests at Wal-Mart—they make it very easy to differentiate between who belongs here and who doesn’t.

buttcheeks

I tell the nurse that I’m afraid of needles and she just laughs and I lean forward and say, “No, listen. I’m afraid. Do you have a numbing shot? I’ve heard that such a thing exists.” And she says, “A shot before the shot?” and I say, “ . . . Yes,” and she says,

“ . . . Sure.”

The nurse excuses herself to get the pre-numbing needle and returns with a freaking golden retriever! Bedside manner, ladies and gentlemen. The extra mile.

I say, “What the H-E-C-K is this!?” and the nurse says, “This is Samantha. She’s our therapy dog. We let children pet her before they get shots—I mean patients—we let all patients of every age pet her before they get shots.”

2448_1098934758097_1143_n

I say, “I see,” and stare into Samantha’s eyes while I lie back. They’re a beautiful brown, almost golden color, and I hand my arm to The Extra Mile Nurse and Samantha pants and smells my right hand and The Extra Mile nurse taps my left forearm. Samantha says, “Don’t worry, kid, everything is going to be all right because I love you just for being you,” and I say to The Extra Mile Nurse, “Don’t forget the numbing needle,” and she says, “Of course,” and I feel a poke and I look deep down into Samantha’s eyes while I hold my breath and I wonder how many hundreds and thousands of children this dog has been loved by, how many eyes have stared directly into hers. I wonder where she sleeps at night and how she’s treated.

“All done,” The Extra Mile Nurse says and I say, “I only felt one poke,” and she says, “I know; the numbing shot worked!” and I look over on the table and only see the remains of a single syringe.

The Extra Mile Nurse turns to leave and pats her leg and takes Samantha with her, and I feel my hand run down her head, down her back, down her tail, and she’s gone.

I never see either of them again.

IV.jpg

Later, another, younger nurse comes in and tells me that she’s here to give me a “cocktail.” She says it will help take the edge off and make me a little sleepy. I ask her where she was twenty minutes ago.

She plugs a bag into my IV and I . . . take . . . a nap . . . .

Minutes or hours or days have passed. I wake up, and I’m still in the same room. I feel my crotch. My testicle is still there. My tumor is still there. For a true moment, I was hoping they had pulled a quick one on me and had it all done with.

The Young Nurse comes back in, tells me that it’s time to go, and takes me away. Two more nurses meet her in the hallway and the three of them navigate me through wide, bright, green corridors. I watch the overhead lights wash over me and try to remember every movie I’ve ever seen that uses that shot. I listen to the wheel on my gurney squeak.

This is it.

They push me around a corner, and I sit up and look over my shoulder and wave to my wife. She waves back and shouts, “Good luck! I love you! I love you!” and then I’m all alone, surrounded by scrubs.

They push me through a set of double doors and into a large room that smells like rubbing alcohol. Two women help me slide from my bed onto another bed. No—this isn’t a bed. This is an operating table. I’m on The Slab.

I lie back and stare at the ceiling, where a gigantic light on a rotating arm hangs above me. A pretty young lady with red hair leans down over me and says, “Are you comfortable?” and I adjust my shoulders and say, “Yes,” and she says, “Good.” She says, “I’m going to inject you with something. Is that all right?” and I say, “Is this—is this the stuff that’s going to put me down?” and she laughs as her thumb slowly pushes on the plunger, and there is an explosion in my chest that rises into my mouth that tastes like copper. I lick my lips and say, “See you on the—”

Other side.

When I wake up moments later I find myself sick and wanting to vomit. An oxygen mask covers my face. I try to sit up and look around because I have this feeling of complete nakedness. Not of nudeness, not the sensation of being unclothed, but of being exposed and out of place. I can only equate it to the feeling I get when I suddenly find myself walking through the young teen’s bra section at Target. What—how did I get here? I hope no one sees me—where’s the exit? Run! No, don’t run, you’ll look suspicious. Walk slowly—no, not that slowly, you’ll look like you’re perusing. Just keep moving.

I look to my right and see a row of hospital gurneys that are all empty and I suddenly feel a sense of impending doom, like I’m the next and final victim in some mad science experiment.

Why do I taste pennies?

My throat hurts fiercely. I bring up my hand to rub my trachea and see that there’s a tube taped to my forearm. Oh, yeah. Everything hits me in a quick wave: Cancer. Hospital. Testicle. I remember why I’m here, what I’m doing. I lie down and hold back my gag reflex. The only thing worse than being in the bra section at Target is puking there.

Suddenly, a nurse is standing above me but I don’t remember what she looks like or how old she was. She asks how I’m doing, and I tell her that it feels like I’m burping up pennies. She laughs and asks if she can touch my beard. I have to pause and reflect if she’s having a bad day and needs a therapy dog like Samantha to help her through it. I willingly tilt up my chin and she runs her fingers through my face pubes.

She tells me that she thinks I might be Amish—a remark I get often thanks to the pattern in which my beard naturally grows; two long side burns into a neck beard thing I call The Hanging Tomato Plant. Hair simply refuses to grow on my cheeks or upper lip.

I tell her I’m not Amish, as far as I know, but secretly wish I were, which is true. I tell her my throat really is sore and she tells me it’s because they stuck a tube down it and I ask if they used a hammer to get the job done.

I shift my eyes to the left and have a quick daydream. I suddenly see my naked, flaccid body on a slab. I see a tube shoved down my throat. I see eight people standing around me, cutting me, sucking my blood into machines, moving my penis and pulling my testicle out through a hole in my abdomen; a male C-section. I see the tumor, a big black pulsating alien brain connected to veins leading back into my cavity. I see them cauterize the wound. I see scissors and sutures. And I see this nurse, standing next to me, holding my penis up with a gloved hand to keep it out of the way of danger.

My eyes shift back to the right.

After what The Faceless Nurse deemed an acceptable length of time, someone wheels me downstairs to a second recovery room where they prop me into a recliner that I swear was the softest chair I’d ever, ever been in.

A new nurse, a chubby blonde woman in her late fifties, gives me some crackers and apple juice, and I’m certain she was probably a kindergarten teacher at some point and is just role-playing with me.

I tell her I feel sick, hoping to get some kind of high-powered-hospital-quality medicine that is going to take away these waves of nausea, but instead, she brings me a bed pan shaped liked an old man’s kidney.

Gee, thanks. You shouldn’t have.

She takes one step back and I puke three times; acidy strings of yellow and white saliva get stuck in my beard. The Teacher Nurse says, “Are you Amish?” and I wipe my chin on my sleeve and hand her the kidney. She says, “You should probably just keep that.”

Over her shoulder, I see my wife enter the room and, thank you, thank you, thank you, I’m no longer alone. I’m no longer scared or afraid. It’s just her and me and that’s it. She says, “Gross! You puked! In front of everyone!” and I laugh.

She hands me a real life cactus that has been decorated with construction paper flowers and adorned with various Game Boy cartridges. At my heart, I am a stupid little vomiting boy.

flowers

I say, “Thank you. This is very nice. I’m going to puke again,” and she says, “OK,” and takes the flowers from me. I grab the defiled bedpan and hold the rank and frothy mixture up to my mouth. I heave once, twice, and then puke doesn’t come up but instead some kind of salty cracker concoction. When I look up I see both my wife and The Teacher Nurse staring at me. I look to my left and see another older nurse that I hadn’t registered before watching me, as well. Where were these people coming from? Did they hear there was going to be a show? I politely ask them all why they’re staring at me and each of them, in turn, looks down at their feet.

I stare back into my bedpan and can feel all three sets of eyes slowly rise up, waiting, watching, anticipating me, each of them so excited to watch me erupt. “Oh, yes,” they are surely thinking, “Here he goes—his breathing is getting heavy! This is going to be amazing!”

Nothing comes out and there is a collective sigh. Sorry to disappoint. I tell The Teacher Nurse that I have to go to the bathroom and she says, “Number one or number two?” and then I’m positive that I’m stuck in some weird role-play with her. I say, “Uh, I just sort of have to pee,” and she says, “OK, that’s number one. Let me help you up, sweetie.”

I hobble across the floor with a 4-foot, 2-inch, fifty-something year old woman “supporting” me. Her perfume is pungent. She opens a door, and I mumble my thanks before shutting it and opening my robe and this is the first time that I realize I’m wearing some kind of—I don’t really know the best way to describe it—a nut-sack diaper, I guess.

It’s like a jock strap with no cup.

Scrotal

I exit the bathroom and excitedly ask the nurse if I get to keep my new accessory and she says, with an air of English dignity, “It’s called a scrotal support. And yes, it’s yours to keep.” The best gift a boy could ask for. I say, “It’s perfect. You’re so sweet. You shouldn’t have.”

The Teacher Nurse helps me back to my chair where I find a doctor handing a folder to my wife. He says, “I don’t know what you’re going to do with them, but we took ’em,” and Jade smiles and says, “Thanks,” and the doctor says, “From what I could tell, we got it in time and it hasn’t spread.” My heart leaps in my chest. It’s over. “But,” the Doctor Guy continues, “check in with your urologist next week. I’m sure he’s going to want to follow up with you.”

Sure, sure, whatever. I. Am. Healed! Hallelujah! I hear a chorus of angels playing the mambo. I want to dance with them but my scrotal support is simply too constricting.

A nurse pulls out my IV and wheels me to the hospital exit. My wife pulls up in the car, and I feel like a woman having just been released from childbirth. Except I have no baby.

I have no baby.

And my balls are . . . completely gone . . . every chance of children I have rests on the shoulders of others.

Jade honks the horn, and I saunter over to the car and crawl into the passenger seat. She hands me the manila folder and says, “One last surprise.” I open the file and find three digital photos that have been printed out on high gloss paper, each one more gruesome than the last.

She says, “I figured that little bastard has given you so many problems in the last month you’d at least want to see his face.”

Inside are three pictures of my bloody testicle sitting on a blue rag with a small gray tumor stuck to its side. We go home, frame one, and put it on a shelf in our living room.

Jade says, “We made it. We survived cancer.”

 

***   ***   ***   ***   ***

Well, that’s the very end of the story. Thanks for reading!

Just kidding. There’s still an awful lot of shit heading right towards this fan.

Tune back in next Monday for THE BLACK TENDRILS: CHAPTER 14 as Cancer reaches out from the grave.

Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,

PARENTS: CHAPTER 6

 

Welcome back for Cancer Monday. Every week we’re releasing a chapter from my book Cancer? But I’m a Virgo, which chronicles that one time I had cancer at 26, until the very bittersweet end.

If you’d like to start from the beginning, click here.

Otherwise, let’s press forward and read together about what it was like to call my parental units to inform them about my tumor.

 

cancer_title_page

Over the last few weeks I’ve left my parents in the dark because I didn’t want to put them through unnecessary Cancer worry, especially if the problem were going to simply solve itself. Which it didn’t. So now I have to work on The Big Reveal. And remember, as any good salesman will tell you, presentation is everything.

Jade pulls into a Walgreen’s parking lot to buy a Diet Coke and we sit on the sidewalk and call her mom. “It’s a lump. It’s cancer. They’re taking it, yes.” My mother-in-law asks to speak to me. She asks me how I’m doing. She asks me how I’m feeling. I tell her that it’s no big deal. I tell her that absolute very worst-case scenario is that I have to get a little chemotherapy, just some needle and I’ll feel like I’ve got the flu for a bit. I’ll get better. Whatever.

She says, “Wow.” She says, “You’re brave.” She says, “Stay strong.”

The truth is, I’m not brave. I’m being forced kicking and screaming through this scenario. I don’t want to be here, and I never would have volunteered. I don’t deserve this.

Deserve. That’s an awfully big word that gets thrown around a lot. Maybe I do deserve it. I try to examine my life from a higher perspective. I’ve lied, cheated, and stolen; said hurtful things to people intentionally; torn people down verbally with complete purpose; and talked shit about my friends and family behind their backs. Maybe I do deserve this.

We drive home and I take a seat in my backyard on our patio furniture. I lean back in the chair and let the sun, one of the only absolute constants in our lives, hit my face, warm me, comfort me.

A man walks through my alley pushing a shopping cart and shouting, “Tamale! Tamale! Tamale con queso!” and I think about him and all my neighbors and how, as far as I know, none of them have cancer. Just me. Just all of a sudden. Nobody knows about my balls. Nobody anywhere knows or cares about anything right now.

My mom wanders around her home 1,500 miles away, feeding her dogs, her healthy children somewhere in the back of her head. My dad fixes a computer, thoughts of gigabytes and RAM clouding his brain, the world a dull fuzz outside of his peripheral.

Everything is about to change for them. They are about to become Parents Of A Child With Cancer.

I pick up the phone and call my mom first. I let it ring six times before I hang up. I set the phone down and stare at it, wondering if maybe she’ll call right back. I stand up and start pacing, rubbing my thumb along the inside of my pinky, a nervous tick I have.

I pick up the phone again and try my dad. It rings twice before he answers in a distracted, gruffly voice. “This is Mike,” he says. “Hey, Daaaaaad. It’s me.” I sort of let the word play out like that because I have no idea how to get into this conversation, how to ease into it; I didn’t plan an opening act or monologue. “How’s it going?” I ask, and he begins to tell me about computer problems that I don’t and probably won’t ever understand. I listen, but only to be polite because I didn’t call to hear what he’s been up to. I didn’t call for any polite reason. I called with one intent and I’m just waiting for my selfish turn to speak.

“What’s new with you?” he asks. And there’s my window.

“Well,” I say, struggling for the words, hoping that they would find me if I just started talking but . . . no. I throw eloquence and pacing to the wind and just say, “I have cancer.”

There’s a long pause on the other end like he’s waiting for the punch line. The great joke this is bound to be. It doesn’t come. Trust me, I’m still waiting myself.

He says, “Oh . . . kay . . . . Did you tell your mom?” and I say, “No,” and he says, “You better let me tell her,” and I quickly say, “NO! No . . . I’d rather tell her myself,” and he says, “Oh . . . kay . . . . ” and I quickly fill in the blanks with, “There’s a good chance I’ll survive. I just . . . I have cancer . . . . ” There’s more silence. Loads of it. Then he says, “Your mom just got home. Why don’t you call her?” And I do.

Yellow, John Boy! How ya’ doin’?” My mother is forever the chipper woman, her syllables bouncing up and down playfully. I feel bad that I have to destroy this. I say, “I’m doing good. I’m doing OK. Did Dad talk to you?” and she, with a hint of suspicion, says, “Nooo-ooooh. What’s going on?”

I take a deep breath and shut my eyes. In my head I think, I’m sorry, Mom. I’m sorry. I wish I didn’t have to tell you this. I wish I could just keep it from you and spare you and not drag you into it. I wish I didn’t have to damage you with this information, and I’m sorry for the pain I’m about to cause you. I feel sick to my stomach.

“I have cancer.”

Another long silence. I’ll get used to these. Like an old computer reading a large file, people need a chunk of time to process a sizable piece of information like that.

There are no tears. She doesn’t cry. Everything about this interaction is atypical. I tell her I should survive and she says, “OK.” I tell her I’ll keep her posted on everything and then, as she’s telling me goodbye, I hear her voice crack and I realize that she is first and foremost in shock, and second, trying to keep a straight face for my sake. I tell her goodbye and the moment I slam the phone closed I begin to cry, vicious sobs that wrench my body.

Moments later my phone rings, and I assume it’s my mom calling back, but no. It’s my brother-in-law, Jarod. I cover my eyes with the palm of my hand and wipe down, pushing the tears away. I look up at the sky, and I think about how there are people out there with real problems. People starving. People dying. Currently dying of cancer. Lung cancer. Heart cancer. Brain cancer. Get it together. I answer the phone, trying to sound cool but coming off like a mop. “Hey . . . . ”

Jarod, three years my senior, says, “Heeeey. So I just heard about . . . . How are you doing?” and this is the one person I’ve spoken to so far who I don’t want to cry in front of. This is my brother-in-law and the person I just want to shrug it off with and give an, “Eh, you know,” but for some reason, I can’t hold it back. Everything comes out. Everything I didn’t tell my mom. Everything I didn’t tell my dad. Everything I didn’t tell my mother-in-law. Everything I didn’t tell my wife. It comes out now.

Everything overflows.

I’m so afraid. I’m so fucking afraid. I don’t know what happened. I don’t know how this happened. I don’t . . . I don’t fucking deserve this and . . . it’s so fucked up. I can’t have kids— I’m like some fucking . . . sterile . . . . I can’t fucking have kids! And they’re going to cut my nut off. I’m so afraid that I’m going to die. I don’t want to die. I don’t want to die.” And then I just cry into the phone and it feels so great and so terrible and Jarod says the absolute wisest thing he can.

Nothing.

He simply listens.

 

***   ***   ***   ***   ***

 

Next week we’re talking about The Mechanical Donut. Excerpt below . . .

 

What hangs in the balance of this test? What will these results reveal? The thought of this being the beginning of something bigger crosses my mind, and I try to push it away. For me, surgery is the end. There is a definitive period afterward, and I go home and go back to work and that’s it but . . . .

What if . . . .

What if the cancer has spread? Lungs? Stomach? Liver? Is this possible? Yes. Yes, it’s all definitely possible. But is it probable? I pause, trying to be logical and not emotional and yes, I realize, it is probable.

Will I die in six months? Could I die in six months? I could die in six months. If it has spread, what are my chances for survival? The Internet tells me that, depending on what kind of cancer I have, it could be anywhere between 30 percent to 90 percent survival rate, which is basically like saying, “Maybe you’ll die. Maybe you won’t,” and then shrugging unapologetically.

 

 

 

 

Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,

BIRTHDAY PRESENT: CHAPTER 5

Welcome back to the on-going serial auto-biography Cancer? But I’m a Virgo. We’re blasting out chapter 5 today after a late start this week. If you haven’t had a chance to jump in yet, it’s not too late! Just click here to start from the beginning! C’mon! You know that one of your resolutions was to read more books this year.

***   ***   ***   ***   ***

PART 2

“What is to give light, must endure burning.”

-Viktor E. Frankl . . . whoever he is

cancer_title_page 

I’m sitting in a waiting room somewhere in Pasadena, staring at a magazine that is listing the 100 most influential people of the year. Lady Gaga, Jay-Z, and Bill Gates are all in attendance. I do a quick scan but don’t see any glossy celebrity snapshots of Jesus.

The waiting room is empty. The couch I’m sitting on is leather and cold. I touch it with my finger and wonder if the cow that this skin belonged to had a nice personality. I touch my tumor by squeezing it between my thighs. It’s still there. Maybe this doctor will simply give me some pills, and I can wipe all the sweat off my brow.

The woman behind the bulletproof glass calls my name, and I walk through a locked door. They weigh me, measure me, etc., etc. The nurse leaves, and I’m sitting alone in the Examination Room. The walls are covered in pictures that children have drawn in crayons, all with personalized messages addressed to a man named Dr. Odegaard.

“Thanks for fixing my arm,” wrote James, 7, with a drawing of himself in a cast, standing in front of a tree. The drawing is so bad I have to wonder if he had to create it with his lesser-used hand.

“You’re the best. Thank you for the Band-Aids,” wrote Tiffany, 6, who decided to draw birds flying over a rainbow.

I try to imagine what my drawing would look like. There would be a picture of a smiling rooster. Above it, in bubble typeface, it would read, “Thanks for saving my dick. I owe you one.” –Johnny, 26.

The doctor enters and asks me a few questions. First the preliminary stuff because it’s my first visit to see him, followed by the more intimate inquiries. “What seems to be the problem?” And, “Describe the lump.” And, “Which testicle is it on?” And this is where I sort of mumble something about a trick question. Mumble something about my uni-testicle. Mumble some off-colored joke that he doesn’t laugh at. He asks me to pull my pants down, and I ask him if the door is locked. He tells me that no one will come in, and I comply.

He snaps on a rubber glove and fondles me in a professional manner. He hums and grunts a couple times, makes the sort of noise you might make after seeing a two-headed turtle—not absolute shock but more of an idle fascination.

He tells me to pull my pants up and that he definitely feels something. He tells me that he’s recommending me to a good friend of his, a urologist (penis doctor; see also dick doc) named Dr. Honda. It’s the 11th of September, and it will be six more days with this thing growing inside of me before I get any real answers.

***   ***   ***   ***   ***

On September 17, 2008, I turned 26 years old. My wife and I spent it indoors, she having made me a cake and purchased me a few books. The day was regular enough, the cake was regular enough, the weather was regular enough and, as far as birthdays go, it would forever be branded in my brain as the most irregular day I had ever experienced.

We arrive at Dr. Honda’s office, a nice brick building in Arcadia, just after noon. My wife and I sit down in the lobby and she immediately picks up a Better Homes magazine and begins scouring it for ideas to, presumably, make our home . . . better.

Everyone in the room with us is old. Really old. Nursing-home old. They’re so old, that they each have some kind of caretaker visiting the facility with them. I try to imagine the day, hundreds and hundreds of years from now, when I’ll be too weak to take care of myself. The day, thousands of years from now when I can’t bathe myself any longer. The day when I eat more pills than food. Millions of years away.

My wife turns to me and says, “What do you think he’s going to say?” and I say, “You know what I think,” and she just laughs and shrugs. She still thinks it’s a cyst or an ingrown hair or an extraterrestrial’s tracking device, all things that are more realistic possibilities than that cancer-thing-that-other-people-get-and-it-never-happens-to-you disease.

They call my name, and I walk back through the door, alone. Every step I take, I am closer to understanding what this thing is. Closer to knowing that it’s either cancer (which I know it is) or an alien GPS system (which it probably isn’t but in many ways would be easier to deal with).

I jump up on that bed-table-thing with the giant roll of single-ply toilet paper covering it and glance around the room. There are no children’s drawings. Instead there are just diagrams of penises and vaginas that go on and on, wall to wall. Dongs that have been split in half lengthwise to show me what the inside looks like. Uteruses and ovaries that resemble cow heads. Black arrows pointing to the dangly bits, informing me what is in my pants. A part of me wants to examine them closer, wants to read all the scientific jargon, but the other, louder side of me doesn’t want to get caught staring at a drawing of a 16-inch schlong.

The door creaks, and Dr. Honda enters the room. He’s a slim Asian man with a mustache and a big smile. He immediately makes me feel welcome and, as I will come to shortly learn, this is not a professional trait of all doctors. He has bedside manner, a characteristic and skill that cannot be taught.

He shakes my hand and introduces himself. He asks me a few questions about life, what do I do, am I married, do I have kids, where am I from, and then my pants are suddenly at my ankles yet again and I’m Porky-Piggin’ it, naked from the waist down.

As he’s squeezing my GPS tracking system with a rubber-gloved hand, I hear footsteps fast approaching in the hallway and quickly ask if the door is locked. He says they’ll knock first. Yeah, I think, But I’m sure it’ll be that knock-knock-open that people are so wont to do.

“My ultrasound guy is here today. I’m gonna have him check you out.” I ask if I can pull up my pants.

You’ve read all this before. You know what happens. I know what happens. The story is inevitable.

I have Cancer.

That thing that makes people go bald and look sick and thin and tired. That thing that sucks the life out of individuals and kills kids and evaporates old folks. That thing I hear about on TV and in movies and sometimes in books. It’s me. It’s on me. It’s in me. Growing. Slowly.

I picture it looking like the black goo that Venom is made out of in the popular Spider-Man films; it’s not quite a gel but it’s not quite a liquid. It’s just a mess of sticky tar that attaches and grows and builds and pulls and destroys until it has encompassed your very being and turned you into someone else. No more Peter Parker. No more Eddie Brock.

Venom.

Cancer.

I’m staring at the ceiling, cold jelly on my testicle. Now I know. Now I know that I was right. Everything I thought I knew was correct. My gut was dead on. Dead. On.

Dead.

Without looking at the Indian man who’s given me my diagnosis, I ask, “Can I pull my pants up?” and he says, “Yes.”

Pamphlets are spread out in front of me. Every single person on every single cover is happier than the last. Everyone is so happy. They’re all so happy about their Cancer . . . and . . . I am just . . . .

. . . .

Dr. Honda tells me that I have two options in regard to the tumor. My Tumor. First, there is a surgery wherein they will cut me open and split my remaining testicle in half, removing the bad stuff but leaving me fertile. I tell him that I cannot fathom anything that sounds more painful. I ask him what the second option is.

He succinctly states, “Full removal.”

I sigh and ask what the third option is. He stares back at me. Nobody says anything. After a moment he tells me that if they miss even one single cell during the nutcracker operation the cancer will simply return, and they’d have to perform a second surgery in order to take the remaining half. I assume this is supposed to make my decision easier.

I look at the ground. At my feet. At my pants. I tell him to take it all. He smiles, and it’s a very kind face looking back at me. You can tell that he doesn’t want to tell me these things. You can see his compassion, and I’m thankful for it.

He pokes the pamphlets and says, “You’re going to want to bank your sperm,” and I nod. I am going to be sterile. Unable to reproduce. There is something very damaging to me about this thought, and the memory of me lying in a hospital bed talking to a doctor when I am eight is at the forefront of my mind.

I shake his hand and walk out of his office. I walk down the hall. I walk back through the door and to my wife, surrounded by old people. She puts down her Better Homes magazine and stands up, smiles. We walk out of the office, down the steps and out the front door into the parking lot and the warm sunshine.

It has not crossed my mind how blissfully ignorant she currently is.

She looks at me and, with her complete confidence with the ingrown hair theory asks, “Well, what did he say?” and, without missing a beat, I respond, “I have a tumor.”

She takes one more step before collapsing onto a parking block and begins weeping. This is when the reality all hits me, and I weep as well.

 

***   ***   ***   ***   ***

 

Thank you so much for reading another chapter this week. Please click FOLLOW down below to stay up-to-date as we’re releasing one chapter a week until the very end!

Next Monday is PARENTS: Chapter 6.

 

 

 

Tagged , , , , , , , , , , , , , , , , , , , , , , , , ,

FIRST CONTACT: CHAPTER 4

Welcome back for week four of the serial novel Cancer? But I’m a Virgo, where we explore my experience with cancer, chemotherapy, sex, drugs, comedy and death. If you’re just tuning in, click here to start from the beginning.

We’ve spent the last three weeks introducing our main character – our hero, if you will. And, uh, that’s me, in case you were wondering. I’m very charming.

But what is a good hero without a really strong nemesis? A hero is nothing without a proper enemy. And so here we stand, awaiting our villains arrival. Quiet now.

He’s close.

Hands inside the cart everyone. This is where it gets ugly.

cancer_title_page_4

I pull into my driveway around 11:30 p.m. I’ve spent the last two days in Vegas smoking enough pot to transform my brain into one of those slimy slug-souls from The Little Mermaid. The house is mostly dark save for a small desk lamp radiating a warm glow in the front window. Like the jingle of that popular hotel, my wife has left a light on for me. The trip back from Las Vegas was mostly uneventful (outside of me having to shit off my front bumper but that story is neither here nor there); the trip driving west always lacks any of the magic of the possibility that crackles in the air when heading toward the Electric City. I haven’t slept more than a few scattered hours in two days and I can feel it.

When I finally open my front door, I immediately feel the warm welcome that is Home. My wife has an aura about her that allows her to take the mundane and turn it into the extraordinary. Our house is no longer wood and dry wall. It is flesh and bone and personality. It is living and breathing and welcoming. She chooses color palettes and purchases knick knacks; the bar-style dining-room table, the weird collection of antique cameras on top of the shelves in the kitchen, the vintage teacher’s desk in the living room, the furniture, the mirrors, the finds, the little treasures. I try to imagine what I would have done to this house if I’d lived here alone, if we’d never gotten married.

I’m seeing white walls. I’m seeing a stained couch. I’m seeing pizza boxes. Maybe I’m a little heavier? Maybe I sleep on a pile of wood chips in the corner? An old blanket tangled around my ankle?

I sit down on my couch and I close my eyes, letting images of the weekend roll through my imagination: Caesar’s Palace, The Venetian, the games, the walking, the laughing, the people, the servers dressed like Alice Cooper and Michael Jackson and Madonna. I chuckle to myself, having proudly taken that right of passage into Manhood that is Las Vegas. I’m 26 and at the top of the world.

Finally settled in, I pull out my pipe and stash of weed. The smoke fills my lungs and I quickly begin to disconnect from the world. So I lost $400? So what?! What’s money? It’s just paper. It’s just representative of something. Take my money, take my job. I’d rather move into the woods, anyway. Lose myself in the trees, get out of the city. I hate the city—the smog, the traffic, the cement. I want clear blue skies and trees and rivers and rocks and animals and stars.

I have to pee.

I stand up and walk to the bathroom, down the dark hallway, bumping into the doorframe. I flip on a light and there, sitting in the corner, is the toilet. It’s all come to this. My whole life has come to this toilet. Every step I’ve ever taken has led me right here. The first part of The Journey that is my life is about to end. Every choice, every waking moment has brought me here, to this bathroom, in this house, in this room, at this time, in this mental condition.

I reach down and fumble with my zipper, pulling it south. I reach inside my jeans and think briefly about my one testicle—its existence a constant reminder of the missing twin—and I start to pee. I stare at the red wall in front of me, thinking, Bright red paint. That’s a bold choice for my wife to go with. But she did it. I wonder what people think when they’re standing here fondling their nut sacks and peeing?

I look down and realize that I am, indeed, fondling my nut sack. This is a simple truth of the world; men just sometimes absent-mindedly grab handfuls of themselves and we bumble around blindly. It’s like a security blanket. It’s platonic. It’s like petting a dog.

Mid-pee, mid-stream, mid-relief, my left hand feels something that does not belong. A foreign object on my body, a second tongue, a third nipple, a fourth knuckle—it’s not right, not normal, not standard. It’s the size of a pea and rests casually on my single remaining testicle.

And this is the moment where my life breaks in two. I don’t know it yet but this is the moment of impact. Nothing will ever be as it was. Nothing will ever be the same.

Imagine with me . . . try to set aside all of your individual predispositions and personality traits. Listen to the stories I’ve told you about myself, pick up my luggage, my emotional baggage, my history of illness (both real and imagined) and touch my genitals with me. Imitate me. Channel me. Possess me. Feel the lump on your singular ball.

Also, you are pretty high right now.

I turn the pea over and over in my hand like a pebble, examining it, touching it, feeling it, becoming familiar with it. No. I can’t become familiar with it. I know that immediately. We will never be friends. The hypochondriac begins whispering in my ear. He knows what it is. He, the great soothsayer of sickness knows what is happening right now. Whatever it is (you know what it is) I know that I hate it. Whatever it is (you know, just say it), I’m sure it will all go away soon. Just avert your eyes and breathe and (CANCER!) it will all be over soon.

Cancer . . . .

A woman tells me that she’s pregnant. She tells me that it’s crazy and exciting and wonderful. She tells me that she knew she was pregnant before the test results. She tells me that she just knew . . . and right now . . . I need no more explanation than that. I understand completely.

Cancer . . . .

I zip it back into my pants and stare at the red wall and think, “ . . . . . . . . . . . . ” and then I walk out of the bathroom, down the long hallway, and into my bedroom, where my wife is asleep. I wonder how she’ll take the news. Will she cry? Weep? Fall into a great depression? Will we cling to one another for mutual comfort, swearing fealty to each other? Swearing that we’ll get through this, don’t worry, no matter what, etc., etc., etc.? I try to summon images of Hollywood movies into my mind; how have I seen this done? How did Mandy Moore break the news in A Walk to Remember?

Jade opens her eyes and says, “You’re back. How was Vegas?” and I say, “Good,” and I say, “There’s something on my . . . . ” and it’s weird but I am six years old again, and I’m talking to my mom about my bawl, and I don’t want to say it.

“What time is it?” she asks in a gravelly voice. “Late,” I answer tenderly, quietly, wanting to keep things as calm as possible for the storm that is about to erupt. “It’s around midnight.” She asks me if I’m coming to bed.

I sit down and run my hands through her hair, the words in my throat, on my tongue, my lips. I say, “I felt something on my testicle. It’s a lump. I think . . . I think I have . . . cancer.”

There is a pause. She looks at me and blinks, once, twice, and I know some great emotion is on the precipice of bursting inside of her. She shuts her eyes, takes a breath and says, “You are such a hypochondriac. You have cancer now? Please.” And she clicks off the bed lamp, leaving me in the literal, figurative, and metaphysical dark.

I am furious (scared). I am angry (confused). I am full of questions, and I want (need) answers. An idea hits me, and I do that thing that no one should ever, ever, ever do when they think they have cancer growing on their nuts and are super super high at the same time.

I get on the Internet and do a Google search for “Hard balls on balls” and the first option is a gay pornographic website starring body builders. I try again. “Infected nuts,” and this time it’s something about oak trees being poisoned. I try again, “How to check for testicular cancer” and the first hit says, “How to check for testicular cancer.” Bingo.

Article after article after article pops up, an encyclopedia of penial knowledge at my shaft tip all for me to soak in and fear by myself in this paranoid state. “This most certainly will be a night I will never forget,” I think to myself as one hand scrolls the text around the monitor and the other pinches that little peapod on my privates.

The first article says, “Take a warm bath, loosen up, pinch your nuts like this. Does the tumor feel like a little rock? Is it the size of a pea? Does it lack feeling? Then it’s probably cancer.”

Red flag, red flag, red flag. Cancer, cancer, cancer. Tumor, tumor, tumor. That’s the first time I’d seen that word as it related to me. I was looking at the word tumor, and I was touching something in my body that may or may not have been (I know it is) a tumor a tumor a cancerous tumor inside of my body I have cancer tumors cancer tumors cancer tumors.

Maybe it’s just a fluke, this article. Maybe I’m seeing what I want to see, believing what I want to believe, y’know? I want to know that what Jade is saying is correct. I’m a hypochondriac, and none of it is real. I click on another article but it says the same thing. Article three and four are likewise. By article eleven, my hope is not simply beginning to break, it is broken.

I. Just. Know.

1575_1063726437724_6423_n

So that’s it. That’s it for this week. And I know what you’re thinking. “Wow, that’s some really bad news – getting a little tumor like that.” Yeah, it is. But, trust me when I say that this is only the beginning and if the story stopped here, it would barely be a story at all. Over the course of the next few weeks we are going to systematically break Johnny down until the only thing that’s left of him is a hollow little shell, filled with anxiety and hopelessness.

We are going to destroy him.

But we’ll do it together and it will hopefully be a lot of fun to watch.

So, next week be sure to come back for Birthday Present: Chapter 5 with excerpt below . . .

***   ***   ***   ***   ***

She looks at me and, with her complete confidence in my health asks, “Well, what did he say?” and, without missing a beat, I respond, “I have a tumor.”

She takes one more step before collapsing onto a parking block and begins weeping. This is when the reality all hits me, and I weep as well.

 

***   ***   ***   ***   ***

Like what you’re reading so far? Click subscribe below and never miss a chapter!

Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,

PLAGUED BY PLAGUES: CHAPTER 3

 

Welcome back for Chapter 3, which is the final chapter before everything starts to slide out of control. Take a deep breath with me and enjoy this last bite. Chew slowly. It’s going to be a full year before we come out the other side together. Next Monday we’re going to receive some very bad news.

But we’re not supposed to know about that yet, are we?

If you’re new, click HERE to go to the beginning. As you can see, we’re only 3 chapters in (and they’re very, very short!) so jump in with us and read a chapter a week all year long as we explore what it looks like to have dick cancer at 26.

 

See you all at the bottom of the slide!

 

 

 

cancer_title_page_3

 

Eczema. Ring worms. Food poisoning. Poison poisoning. West Nile. Airborne toxins. Flu, cold, constipation, diarrhea. I have suffered from it all, both real and imaginary. My wife points an accusing finger at me and says, “You’re a hypochondriac!” and I casually walk into the other room, get online, and look up the disease to see if I am actually exhibiting symptoms.

 

Illnesses are my passion and I collect them like stickers in a book. In elementary school, I had ulcers. In junior high, insomnia. In high school, I became convinced that I had acquired early onset Alzheimer’s because I couldn’t remember any of the mathematical equations that help you solve endless rows of meaningless problems. It seemed to come so easily to everyone else. . . .

Years later, a friend will tell me that his son can’t seem to get a grasp on numeric sequences. More than just a few in a row and “Poof,” he says, “they’re gone.” He tells me the disease is called dyscalculia and it simply sounds too similar to Dracula for me to pass up. I’m positive I have it. I wear it on my sleeve, displaying the fact proudly. I won’t let my handicap hold me back. I won’t box it up in some closet. Plus, I’ve always been a bit more of a words guy and less of a digits person anyway so I feel like there is something strangely poetic in my illness, my disease, my burden.

My wife says, “You don’t have dyscalculia. You’re just an idiot.” I look up the term idiot on Web MD betting that she’s right but no results return. Further research is required.

 

***   ***   ***   ***   ***

 

My stomach rolls over, and I vomit into a toilet, beads of sweat dripping down my forehead. My knees are raw from kneeling on the bathroom tiles. My wife circles the door frame, blocking the light shining dramatically on my face and says, uncaringly, “You’re going to be late for work.”

“I can’t go to work! Look at me! I’m sick!” I plead, desperately trying to make her understand. It’s not cancer, not yet (this is still years and years earlier), but it’s definitely something.

“You’re not sick.” I puke again just to reinforce my point and then elaborately throw myself onto the bathroom floor, the back of my hand pressed against my sort-of-hot forehead. Not sick? Not sick? Has she heard of the norovirus?! Because I have it on good account (my friend’s friend is pre-med) that it’s making rounds this year. A couple people died in Missouri. Didn’t my wife hear about this? Doesn’t she watch the news on Comedy Central? Doesn’t she read The Onion?

She tells me that I don’t have the norovirus. She tells me that I have the moron virus and then she laughs at her own dumb little joke while I just dry heave twice in a row. I tell her to look away. I tell her that the norovirus is really taking its toll on me when suddenly my chest is racked with a pinching suffocation. It feels like someone is pulling the membrane off my lungs every time I inhale. Jade raises an eyebrow and says, “Pleurisy again?”

I just hold up a hand for her to “be silent” while I bare my cross. She says, “Oh, geeeeez.” After the pain passes I explain that, “I have pleurisy,” and she says, “I know you think you do,” and I say, “It’s an inflammation of the lining on the lungs,” and she says, “You’ve told me the definition,” and I say, “My mom has it too,” and my wife says, “I’m sure she believes she does.”

Is there nothing I can do to convince her of my various conditions? Is it my fault I have an immune system that is susceptible to such attacks? Someday, I tell myself, someday I’ll get something and she’ll believe me.

Jade says, “Are you day dreaming about your illnesses?” and I say, “Huh? What?” and she says, “Wishing someone would believe that your fake thing was real?” and I say, “My fake thing is real. Remember The Blood Shit Incident?”

Jade says, “I remember The Blood Shit Incident. I wonder if you remember it.” I say, “Of course I remember it. I was there. I wrote it.” And she says, “Every piece of good fiction needs an author.”

 

***   ***   ***   ***   ***

 

I’m sitting on the toilet in my mom’s house and I’m staring at a piece of toilet paper covered in brown and red. I’m shitting blood. It’s been happening for a couple days. Not a lot. Just a little. Just a few drops. Just enough to fill a vile. Or two.

I’m nineteen and I try to weigh my options—the possibilities, the probabilities, the causes, the outcomes. “Why would my ass be bleeding?” I ask myself. “I don’t stick things up it. I swear.”

Who do I approach? Who do I ask for advice? Not my dad. Definitely not my mother; I don’t want to see the sequel to The Nut Sack Situation. No, I’ll handle this one myself. How to proceed, how to proceed. The Internet? Too traceable. The search engines all have a way of remembering things I type in, and I’m no good with PCs. I don’t understand how to clear the cash or eat the cookies or whatever. The library? Absolutely not. The idea of checking out a book about anal fissures will certainly get me on some Pervert of the Week list.

Finally, after meditating on the rhythmic drip-drip-drip, the answer comes to me clearly, like a comet in the night sky. It is a moment of what some may call divine clarity. It is so simple I can’t believe I didn’t see it before.

I will simply ignore the problem and hope it fixes itself.

I am a human body! I get scratches and cuts all the time and what happens? Blood clotting, scabbing . . . something . . . something else, science, etc., and there you have it, back to normal! My inner ass cavern will be the same! I just need to leave it be and give it some time to heal. I’ll eat soft foods. I’ll push very, very gently. Or maybe not at all. I’ll practice Zen meditation and just let the fecal matter slither from my rectum like a snake shedding skin.

This could work. This could definitely work.

Two weeks later, I’m still shitting blood. It’s not slowing down. What was I thinking?! Scabs?! Inside my ass?! What if there are ruptures and the blood ruptures are being infected by feces? Don’t people die when their shit and blood begin to mix?

My stomach hurts. My head hurts. IT’S HAPPENING!

Could I bring this to my girlfriend? Could I ask Jade about this? Yeah! She’s really smart. A grade-A student through and through, she was studying to become a neonatologist and you know anyone with the suffix -ologist in their job title is legit.

She knows things I don’t know. She understands things about blood and bile and positrons and neutrons and Klingons and she pretty much just knows everything! She’ll know . . . she’ll know. But how do I breach the topic? This is touchy stuff, and it’s important not to make it weird. Then the answer comes to me clearly, like a comet in the night sky. It is a moment of what some may call divine clarity. It is so simple I can’t believe I didn’t see it before. The words come to me with such smooth precision it is as though a greater entity is speaking directly through me.

We’re sitting at the table, alone, at my house, eating jam-covered waffles. She smiles at me and I say, “I’ve been shitting blood for three weeks now. What do you suppose this—“ she drops her fork, but I finish my thought anyway, “—could mean?”

Coming from a world where it took eight years to get my missing testicle examined by a doctor, I was made strangely uncomfortable by the speed at which Jade scheduled an appointment for me later that same day. Neither of us knew it then, me nineteen, she just turning eighteen, but we were being given a small glimpse into our future, more than a decade away: The Caretaker and The Ass Bleeder.

I love her. I am nineteen and I know this. I love her for all of the fantastic things she is, says, and does, but I love her because I can tell her that I’m shitting blood and she is willing to get her hands (figuratively) dirty to solve it. She’s had commitment from day one. She’s a barnacle. She’s not letting go.

The next day, sitting again in the stagnant, falsely fresh smelling waiting room of my local clinic, I find myself staring at those same Georgia O’Keeffe paintings and wondering, “Where do they come from? Who is Georgia O’Keeffe? Why do all hospitals and clinics insist on using her work?”

I lean over to Jade and I ask (since she knows everything), “What do you think they’ll do? Do you think I’ll just get some pills or cream?” and Jade answers, “He’s probably going to take a speculum—” and I cut her off.

“Sorry. A what?”

“A speculum.”

“What’s a speculum?”

“Oh, it’s like this thing they put in your vagina and they turn this crank and it opens you up so they can get a really good view. They’ll probably do that to your ass.”

My face goes white. My blood turns to ice. She knows everything.

I say to her, “They’ve done this to you?” and she says, “Yeah. Couple times,” and I say, “And you think they’re going to—are you messing with me?” and she says, “No. They’re checking to see if you have blood fissures. They need to look. So they need to spread.”

I stand up. I am done. I will go with Plan B: The Scabbing Over Plan. But Jade grabs my hand before I can run and tells me to sit down. I think she’s going to say she’s just joking but instead she says, “Bleeding from your butt can mean colon cancer and men eighteen and up need to be getting checked regularly.”[*]

I say, “But the speculum . . . ?” and she finishes with, “Oh yeah, they’re shoving that thing way up there and parting you like the Red Sea.”

I stand up and begin heading toward the door when the nurse calls me, “Johnny . . . Buh . . . rookbag?” Every eye in the room lands on me, the guy standing up, looking like a deer in headlights. The nurse speaks softly, over the shuffle of papers and various weekly literature, “Right this way.”

Before disappearing into the halls, I turn back and take one last look at Jade who is sitting in her chair, a gossip magazine on her lap, spreading her hands open, miming a speculum.

I hate her.

But not the kind of hate that means I’m going to burn her house down. I mean the kind where you know they know better and they’re making you do something that’s necessary even though you don’t want to.

Inside the doctor’s office there is no cancer, there are no fissures or ruptures and there is, thankfully, no speculum. There is only a man with a rubber glove, a bunch of lube and a strange eagerness to examine me. In the end he gives me some pills and some cream and says to eat soft foods and to not press so hard. He tells me that the human body is an amazing thing and that I’ll be just fine.

It’ll heal itself.

I shrug and shake my head and walk back to the lobby, where I eyebrow beat Jade to death. We hold hands and walk out into the sunlight while Fate sits back and laughs, waiting eagerly for us to return on this path sooner rather than later. It watches our backs as we fade out with the glossy luster of blissful ignorance protecting us like armor.

We are still young, only nineteen. And neither of us have ever been struck with the harsh reality of true tragedy. We just don’t know anything yet.

But we very soon will.

1575_1063726837734_8695_n

 

[*] Fact. So if you find the dirty death star dripping darkness, dash to the doc and have your derriere dissected.

 

***   ***   ***   ***   ***

 

Alright, guys. Listen. That’s it for now. Next week is FIRST CONTACT: CHAPTER 4. And this is when the walls all begin to crumble. I’ve included a little excerpt below if you’d like to peak at it.

JB.

 

FIRST CONTACT: CHAPTER 4: EXCERPT

My left hand feels something that does not belong. A foreign object on my body, a second tongue, a third nipple, a fourth knuckle—it’s not right, not normal, not standard. It’s the size of a pea and rests casually on my single remaining testicle.

And this is the moment where my life breaks in two. I don’t know it yet but this is the moment of impact. Nothing will ever be as it was. Nothing will ever be the same.

 

1575_1063727317746_1549_n

***If you like what you’re reading, please feel free to share***

***And remember to subscribe down below***

 

 

Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,

The Orange and the Sock: Chapter 2

 

Hello, boys and girls! Thanks for tuning back in for chapter 2 of the on-going series Cancer? But I’m a Virgo, a dark comedy about the time my body tried to kill itself. There’s romance, there’s sex and there’s drugs. It’s all coming, week by week, until the bitter end.

But before we get to that, I have to tell you a couple things that happened to me before. Way before. Years ago. Decades now, actually.

Today let me tell you a story about something that happened to me in elementary school. And it’s very important. Let me tell you a story about an orange and a sock.

Sit down. Curl up. And let’s get very, very, personal.

PS. To start from the very tippy-top of the prologue, click here.

 

 

 

 

cancer_title_page_2

 

I am six years old, and I know that something is wrong with me. It’s something that stretches far beyond the reaches of the faux-fashionable brown mullet that frames my over-sized head, making me look like the Son of Frankenstein. The wrongness is not the cold sore on my mouth that has been emblazoned into so many family photos from that year. It is not my excessively bushy eyebrows that look like storm clouds.

The year is 1988, and the wrongness has always been. It isn’t something that came about or was discovered one day. It is something that I’ve simply grown horribly accustomed to, the way someone who lives next door to an airport may eventually drown out the jet engines with their own thoughts.

I have only one testicle.

Or rather, I have two. But the second is undescended, just chilling out in my six-year-old abdomen, afraid to come down into its hormone hammock. I know this is unnatural and wrong and I’ve thought about it every single day for as long as I’ve understood its wrongness. For as long as I’ve understood that boys have two and I have one, I have dwelt on its absence. For as long as I can remember, this has been my body.

13873059_10154328611462510_2264191796753411322_n

One day, after spending an inordinate amount of time contemplating my testicle, I decide to approach my mother about the issue.

I go upstairs to their bedroom where my mother is folding laundry. The question burns in my stomach and in my throat, and I don’t want to say it because, even though she is my mother . . . she is my mother . . . and I don’t want to talk to her about my privates.

“Mom?” I begin. She sets aside one of my dad’s brown military shirts, folds her hands in her lap and smiles with a welcoming air. This is her finest quality; she will give you everything she has, every ounce of attention, every piece of love she can muster. It belongs to you.

I lean in the doorway and fidget awkwardly. I look down at my sneakers. I look down at my zipper, guarding my dirty secret like a monster with a hundred teeth.

“Why . . . do I only . . . have one . . .?” and I can’t even bring myself to say that final word, afraid it will just hang awkwardly between us like a vampire.

“One what, honey?”

Today, there are hundreds of synonyms for it. Then, I knew only one and the word choked me. I stare down at the brown almost-shag-but-not-quite carpeting, dirty with white dog hair. I look up and begin fiddling mindlessly with the doorjamb, reaching out and running my finger over the wooden plank. I expel my breath and quickly cough the syllable out as nonchalantly as possible.

“Ball.”

My hands convulsively go toward my crotch, and I feel dirty and perverse having said the word in front of my mother. We often forget as adults that children know shame, true and terrible shame that dwarfs our own. Children lack the proper familiarity that they are not alone in their experiences. To them, the world is happening for the first time, and the world only exists in the bubble of their own realities.

As a man, you can accept who you are, and you can own it. Your flaws can become quirks that you wear proudly, if not a bit oddly. As a child, you are simply different from everyone else, and at six years old, I am extremely ashamed about my secret, and I want nothing more than to be Normal.

My mother tells me that my “ball” is up in my tummy and that it’s been that way since I was born. She tells me that the doctor says it will just come down one day, abracadabra. It’s simply going to appear again like a mysterious second uncle.

She tells me that, after the doctor found it, he never checked again, never followed up—that during all my infant appointments, it was never rectified. As a man, when I press her and ask, “Why didn’t you do something? Say something?” She says, “I eventually stopped changing your diapers and then . . . ” She shrugs sadly as the thought trails off.

13659019_10154328611402510_4419972068252700847_n

As a boy, I cry about it often and the tears add to my shame and eat away at me from the inside like a cancer. Eventually, after not just months of living like this but years, I finally bring the issue back to my mother’s attention.

When? When is my bawl coming back down?” and I say it just like that, bawl instead of ball. I really lay the emphasis on the inflection, spitting out the word like venom. I am eight years old now and I’ve never felt so much as a rumble from the mythical Loch Nut Monster.

Sometimes I try pushing on my abdomen, hoping to cause a miraculous healing. I imagine an “extra” testicle just suddenly slopping down and filling up my nut sack like an orange in an old sock and voila problem solved.

This does not happen.

As the year progresses, larger questions begin surfacing in my mind. The Big Questions. The Long-Distance Questions that perhaps no normal third grader has any reason to be thinking. But I am no Normal third grader. I am a child who spends endless hours meditating on his genitals and pressing on his abdomen, hoping to give birth to a testicle.

What happens when I get married? The thought drops in my lap like a cinder block. I’m going to have to tell a girl about my secret. This prospect is worse than anything I have ever imagined. I try to conjure up the conversation in my head. Would I tell her before we were wed? Would I tell her after we were married? Would I tell her on our wedding day so that we’ve already spent a bunch of money and our families were all there and she wouldn’t be able to run away? Yes, that’s the way I’ll do it. I’ll trap her!

First comes love, then comes marriage, then comes the . . . . A heaviness fills me, and something I had never considered strikes me like a slap on the face. Fertility. Potency. Mobility. These are not words that I understand, but they are words whose meanings I comprehend. Can a man create babies if he is lacking half of his equipment? I’m imagining a jet with one wing. I’m imagining a gun with no bullets. I’m imagining a dick with no bawls.

At a third-grade level, I fully understand the basic concept of where babies come from—insert Tab A into Slot B. But I don’t understand what happens when one of the key components has gone AWOL. I don’t understand the science behind it. Is one a positive charge and one a negative charge? Do you need them both to create some kind of high-powered, special juice? Is one the fluid and one the sperm?

My life is crumbling before it’s even begun, and my mental state is collapsing. I rush home after school and begin demanding action from my mother. “Where is my bawl?! I want it back! It’s mine! I want to see a doctor, and I want him to fix me.”

 

***   ***   ***   *** ***

 

This is the first time I’ve had any kind of physical done. I’d never been in any type of sport, so I’d never been required to go through the customary “Turn your head and cough” routine. I am terribly nervous as I sit in the waiting room, my hands sweating, my foot bouncing. This is the first time that anyone outside of my mother will know my secret, and this person will discover it by touching me. I am eight, and I am about to be fully exposed in front of a stranger in the most intimate fashion possible. As I wait, instead of reading a magazine, I just stare at a Georgia O’Keeffe painting, an artist whose work I will become well acquainted with in roughly twenty years.

“Johnny . . . Broogbank?” People more often than not say my last name with a question mark and a randomly misplaced letter. My mother and I stand up, and in the back hall they measure me, weigh me, blood pressurize me, and escort me into a broom closet adorned with more Georgia O’Keeffe specials.

I stand up and begin to pace wildly while cracking my knuckles. My mother suggests that I relax because the doctor has “seen it all” and I care little and less because I have seen “almost nothing” and I’ve never had a grown man fondle my package before and I find the idea to be terribly off-putting, even at eight. Or rather, especially at eight.

There is a gentle knock at the door, and I immediately know that we have entered The Point of No Return. My stomach drops and all the butterflies inside of it take flight. He enters the room, a stethoscope around his neck, and his physical features immediately remind me of the pink Franken Berry cartoon character on the cereal box, enormous and hulking, thick in the shoulders, hairy hands, but a kind face with a gentle smile.

Dr. Franken Berry asks my mother and me a few questions in that friendly but sterile tone that most GPs have before tapping the table and telling me to “Pull down my pants and hop up here.” I fumble slowly with my belt and then, in sheer neurosis, I ask, “Underwear too?” and he replies in the affirmative.

And it’s in that next moment while bent in half, my hands clutching the waistband on my very tight, very white undies that I wonder why I asked my mother to come here with me.

Dr. Franken Berry feels around my abdomen and begins pressing and I almost tell him, “Don’t bother, I’ve been trying that technique for years,” but instead say nothing. He grabs my bawl and says, “Turn your head to the left . . . and cough. Turn your head to the right . . . ” and I see my mom sitting in the chair. She looks so sad. Her eyes are downcast and she fiddles with her fingernails. I am glad she’s here, and I am glad she’s looking away, supporting me quietly in my shame. “ . . . And cough.”

He tells us we need to do surgery to try and draw it down and I am joyous, celebratory even. I am going to be whole. I am going to have two testicles. Two bawls. Like an x-rated version of Pinocchio, I’m going to be a real boy.

I’m pulled out of school for the operation because I will be hospitalized for three days, the entirety of which are all very blurry to me. The tent-pole moments I will highlight are as follow.

I am all alone on a gurney in a hallway. A male nurse approaches me and says he’s going to give me an IV. I’ve never had one, and I am horrified. I see the size of the needle and my horror turns to terror. He rubs my arm and massages it and slaps it and then says, “All done.” The man was an artist and his craft so perfect and painless that, to this day, it is the IV that I rate all others by.

Inside the operating room, I count backward from ten and only get to nine before I black out from the anesthetic.

My next memory is laughing with my mom in the recovery room. Some commercial has come on that consists of a talking roll of toilet paper, and I believe I am able to recall this specific moment so vividly not because of the humor but because of the pain, which is intense and, very literally, sidesplitting. The surgeon has cut a three and a half inch gash on the right side of my groin, and I can hear it scream every time my muscles cinch up. What he did in there, I have no idea, but it feels like I’ve been stuffed full of hot thumbtacks. Laughing and crying, I ask my mom to turn off the television and to please stop imitating the talking toilet paper.

My next and final memory of the hospital is me asking my mom, “Did they do it?” and her simply saying, “No,” and I am so crushed that I weep in my bed. I am eight years old and the finality of it is the worst news I’ve ever had in my life. I will forever have only one testicle. One bawl. I don’t want to talk. I don’t want to listen. I just want to forget.

Perhaps this seems overdramatic, but to a young boy, fitting in is the world, and I’ve just been told that I will forever be different and not simply through the color of my hair or my height or my language but by the one thing that makes a boy a boy.

A doctor enters the room to check my incision. It is the first time I’ve seen my wound and the sight disgusts me. My skin on either side of the cut has been pinched together and folded over itself and then sutured through a number of times. It looks like someone has laid a thick string of flesh-colored, chewed up bubblegum across my skin and then threaded it with long spider legs. The smell is foul. It is yellow and blue and dripping fluids but the doctor says it looks fine, which I take as an extremely relative deduction.

He asks me if I have any questions and I do. It’s one that I have to know the answer to but am horrified to ask for fear of the truth, for fear of more bad news. I simply say, “Can I still have kids?”

The doctor looks at me and just chuckles and says, “Yeah. You can still have kids. Think of your second testicle like a spare tire. It’s just in case.”

Just in case, I think. Yeah. After all, what are the chances I’d lose my backup, as well?

The doctor leaves and my mother, at a failed attempt to make me feel better says something poetic like, “It was all shriveled up and dead so they had to pull it out. They said if we’d left it in there for another week it could have caused cancer.”

It is a phrase that I will revisit frequently in my life, wondering if something was left behind, lying dormant, waiting. . .

10616152_10204990176898646_3795949844925958803_n

 

We did it! We made it through! Together! And I’ll be honest, I’d be lying if I said I didn’t feel a little like Dumbledore taking Harry Potter into the pensieve to share with him my darkest memories.

And now it’s your turn to share! Please share this post. I want to get this thing published but we need it to spread its vile tendons out into the weird world of social media. Share, rinse and repeat. And click the follow button down at the bottom to get alerts when new chapters come out. Next Monday. And next Monday. And next Monday. And on and on. Until we’re done.

 

 

Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,

Cancer? But I’m a Virgo.

Alright, folks! This is it.

A few years back, I had cancer. Spoiler alert, I lived. A couple years after coming out the other side of the dark tunnel that is doctors, drugs and disease, I wrote everything down and compiled it into what is sitting before you now – the prologue to, what most of us today would call, a “book”.

I’d like to be able to release a new chapter every week for the duration of the novel so, if you’ll stay with me, together we can relive this treacherous, life-altering, reality bending experience together over the next 42 weeks. Yeah, that’s a serious commitment but if you’re down, I’m down.

Actually, even if you’re not down, I will probably just blindly and stubbornly press on on because this is my blog and I can do whatever I want here. My house, my rules, baby!

However, on the off chance that you are into it, please click the follow button in the bottom right corner and we’ll slowly mosey down this little rosy road together.

Let’s begin.

_________________________________________________________________

 

cancer_title_prologue

 

It’s my twenty-sixth birthday and I’m standing in front of a rotund Indian man with my pants around my ankles, my wiener hanging limply between us like a sad-faced emoticon. He gently pats the paper-covered exam table with his meaty hand and in his thick accent says, “Please sit up here.”

I pull myself onto the table, no easy feat with my pants bunched on top of my sneakers and my hands cupped neatly around my genitals for the sake of modesty. The ultrasound technician takes a seat on a low stool next to me, pinches my noodle between his thumb and forefinger and says, “Hold this, but don’t pull on it.” First, this is everything nightmares are made of. Second, I can’t help but stop to wonder what kinds of patients typically find themselves in this room. Men who, when confronted with a white-robed stranger, posters of bisected colons, and the aroma of cleaning supplies, are suddenly thrown into such an erotic frenzy that they simply must begin to “pull on it.”

I lie back and hear the sound of two rubber gloves being stretched and adjusted over as many large hands, the latex squeaking against itself. The noise sends a shiver up my spine, and the sterile smell in the air turns my stomach.

I just want this over. I just want an answer.

The Indian Man says, “I’m going to apply the jelly now,” and I’m thankful for the heads up because, lying here today, I have no idea what to expect anymore. Things have been spiraling quickly out of control for about a month. There are too many questions cropping up without near enough answers. My life has become a really terrible episode of LOST, except there are no polar bears or time travel or bad CG smoke monsters . . . .

He begins to gently rub the cold gel on my nut sack when, making a desperate stab at comedy, I nervously blurt out, “Hey, man, you’ve got the best seat in the house!” I say it as a joke. I say it to lighten the mood. I say it because I’m afraid I’m going to die, and I need to laugh.

The Indian Man completely disregards my comment and instead pulls out an ultrasound gun that he places against the taut skin of my scrotum (the room feels like a brisk 64 degrees and my body is adjusting accordingly). As he snaps several high-contrast black and white photos of my testicle, I shut my eyes and pretend that I am somewhere else; in the parking lot, at work, at home, in outer space. I attempt to force myself to have an out-of-body experience. I want to step away and come back when this is all over and hopefully “all over” is in just a few moments and not several months or years from now.

I open my eyes and see, on the ceiling directly above me, a little sign that reads, I’D RATHER BE FISHING. I begin to count the dots in the tiles, one hundred, one thousand, one million little pinholes above me, and I place my mind inside each one. The Indian Man takes his time and is very thorough in, what is for him, a routine scanning procedure. For me it is everything.

The silence is palpable. I can feel it in every pore of my body. I can sense the electric buzz from the machine where, as I glance over, I can actually see my testicle for the first time in my life. It just rests there like an enormous black and white egg filled with hope and desperation and anxiety and sperm. The quiet resting too heavy on my shoulders, I break it with, “Is it a boy or a girl?”

The Indian Man doesn’t smile at the joke. Instead, he simply states, “It’s a tumor.”

2448_1098934558092_9699_n

 

 

That’s it!

Next week let’s meet up right here again for CHAPTER 1: THE DESERT. And if you think you might miss it, hit that follow button in the bottom right corner and we’ll speak soon!

 

 

Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , ,

The Quenching Waters of Shame

 

Let me tell you about one of the most shameful moments I have ever experienced. Let me tell you about the awful time I wanted to disappear into nothingness because I was so humiliated by my thoughtless actions. Sometimes Truth is a venom and when it works its way into our hearts it hurts fiercely but it also helps if you let it. It can burn away all the fat of reality until we experience only the kernel of humanity that is left.

Let’s begin…

10273349_10209156818101885_4936465669027778211_o

The heat in Africa is like someone holding a blow dryer in your face on a July day. It’s like eating mashed potatoes and scrambled eggs in a Jacuzzi. It’s out of the frying pan and into the fire.

 

When you get a bottle of water, you don’t sip it. You slam it. You slam it if it’s cold and freezes your throat. You slam it if it’s room temperature and feels like spit. There is no casual thirst here.

 

And now, standing in the dirt, covered by the shade of our van and wiping sweat from my face, I see Ryan, a Ugandan who’s tagging along with us, kill an entire bottle in no time flat. He wipes his mouth and says, “I know dis guy named Geronimo – he’s a big guy. Will take a whole bottle and just drop it right down his throat into his big belly.”

 

I lift the piss-warm water to my lips as my mind wanders back to America where a faucet gives me ice-cold water and I don’t have to worry about microbes giving me diarrhea and headaches. I say, “How fast you think you can slam that bottle?” Ryan shrugs and I pull the stopwatch up on my phone.

 

“GO.” Ryan kicks his head back and goes bottoms up. The clear liquid birdie-drops past his teeth and he doesn’t spill a drop. “Eight point five seconds. That’s insane.”

10644797_10209043329144919_3659142720125948374_n

He grabs a second bottle from our stash in the van and hands it to me. “Ready, Johnny?” I nod and watch his thumb hit the timer. I flip the bottle up, trying to imitate his method, but instead water jets up my nose and covers my shirt. I cough and water sprays out of my mouth. Ryan starts to laugh as I go into a choking fit. “Haha! Twelve seconds, Johnny! I win!”

 

No! I can do better! I can do –”

 

But my thought is cut short and the contest is forgotten forever as I realize where I’m standing, as I realize where I am and what I’m doing. “Maybe . . . we shouldn’t . . . do this . . .”

 

Staring at us is a small group of Ugandan children, twelve in all. Some of them are barefoot. Some of them wear shoes that are tied to their feet. One kid has a hole in his pants so big I can see his penis hanging out. Their shirts are either too big or too small for their bodies. Their skin is as dark as a plum and the dirt they are caked in is like a powder. One child has a herniated belly button the size of a kiwi. Their white eyes look at me. Look into me.

 

I’m not just in Uganda. I’m in the slums. I’m down here shooting promotional videos for an organization that houses abandoned babies, an organization that takes infants who have been left for dead inside of dumpsters and places them with new mothers. I’m down here representing them. And I’m down here representing America. And I’m down here representing humanity. And I’m supposed to be helping. I’m supposed to be in the dirt with these kids, giving them the tiniest shred of hope in their day. Earlier I was doing close-up magic—making a small coin disappear—and teaching them secret handshakes and they were chasing me around and hugging me and laughing and shouting, “Mzungu! Mzungu!”— an African term that means white traveler—and a humbling happiness came over me wherein I knew I could not help them all and I knew I could only help in this moment.

12792235_10209104066023116_6929054020331206724_o

I look at their houses and I see mud walls with tin roofs. I see a canal, an undeveloped sewage system, that is one foot wide filled with human waste running in front of their homes. I see someone from my team open up a bag of suckers and I hear 30 children scream with so much glee that at first I think someone is being murdered. The children run around waving their candy in the air and laughing. I watch a two-year-old drop his sucker in some kind of dark brown mud. I watch him pick it up, wipe it on his shirt, and stick it back in his mouth.

 

I watch the mothers look at me and I know what they are thinking. They know where I come from. They know what I have. They know what they never will. Their mats in the dirt are as good as it gets and are as good as it ever will get. There is a quiet hopelessness that my presence rubs their noses in.

 

A drunken man wanders down the street and begins shouting at us in Lugandan, the local language. I ask Ryan what he’s saying. “He doesn’t want us here. He thinks you’re going to take his picture and make money from it and he will get nothing.”

 

“Can you tell him that we’re going to take the images to raise money for the babies?”

 

Ryan says, “He doesn’t care. Those babies are not in this village. Uganda is a big place. We might help someone but we won’t help him.”

 

We can’t help everyone.

12794916_10209121153610295_47371609264207356_o

The man disappears and comes back holding an iron rod. He cranks the volume on his voice and begins waving it around. The man gets up in the face of a local girl and begins pointing at each of us wildly. Ryan translates for me, “Why are you helping them? They are white, and they don’t care about you! When they are done they will leave and forget about you and you will still be here, poor and broke!”

 

It’s easy to paint this man as the bad guy, but the truth is that he’s spent his entire life being treated like an animal as we all come from our homes and take pictures of him in his natural habitat. He feels exploited.

 

When he’s spoken his mind, he stumbles away.

 

In a place like this – where you have so much more than everyone else, where you’re the richest guy in the room and everyone knows it—it’s easy to start thinking of yourself as some kind of gracious Mother Teresa type. It’s easy to start believing that you’re sacrificing yourself for The Children. Vanity moves in fast.

 

“I’ve come from America to save you! Do not fear, simple African people, for I have brought you the best thing I can: myself!”

12806246_10209043340425201_1796150541417785414_n

I reach out and I take a child’s hand and I look into her eyes while I wonder how filthy those fingers are. How much human excrement is on them? I say, “How are you? What is your name?” while I scan her for any cuts that could infect me with HIV.

 

I’m down in it. For tonight only. And I am helping. But not this kid. Some kid somewhere will feel the effects of this video we’re making. It will raise awareness and it will raise money and that money will help some kid. But not this one. Not any of these. And the guy with the pipe is right. When I’m done here I am going to go back to America and you will still be here. And you will still be poor and broke.

 

But I won’t forget you. He’s wrong about that.

12804897_10209098764530769_3573624127880892545_n

The sun is dropping down, and this close to the equator it only takes 15 minutes to go dark. The kids chase after us, laughing and dancing, smiling and shouting, “Mzungu! Mzungu!” as we walk to our van.

 

We get to the lot and I’m sweating. Ryan slides open the door and grabs a bottle of water, “I know dis guy named Geronimo—” And that’s how it all plays out.

 

How quickly we forget ourselves.

 

And now here I am, my eyes connecting with each one of the twelve kids. I think I know who they are and what they are. I believe that I am deep enough to understand the sorrows of their culture. And with clean water rushing down my chin and into the dirt, pooling in the dust at my feet, I realize that I am filled with more shit than the ditches in front of their homes.

 

I feel my heart break. Not for them. But for myself. I am baptized in shame. I swing my pack off and reach inside. Please, please let there be more. Please. My hand wraps around warm plastic and I pull out a bottle of water. I push through the crowd to the tallest child and say, “Are you the oldest?” and he nods. I hand him the bottle of water and I point to the crowd. “Share.”

 

Half the kids get a sip as it’s passed carefully between them, and then it’s gone and is discarded on the ground before they all look back at me. Nobody is multiplying fish and loaves here.

 

Our driver hollers. “Suns down. We gotta go.” And he means it. This is no place for a mzungu at night. I jump into the backseat and the kids all press their hands to the glass. “Mzungu! Please! They babble in their native tongue, shouting pleas at me.

 

I can’t help you.

12828445_10209167451407711_5819582291565281638_o

The engine fires up and the van shifts into drive. “Mzungu! Mzungu!” I press my hand against the glass and we start to move. I thrust my fist into my pocket. Where is it? Where is it? Hurry up! Hurry up, you fucking idiot! You fucking selfish idiot! The pocket is empty. I go for the other one—just a bunch of wrappers and lint. Where is it!? Where did I put it? There! My hand wraps around a single coin worth 100 shillings or about 3 U.S. pennies – the one I was making vanish with my close-up magic.

 

I swing open the door and reach out to the smallest kid, front and center. “Here! Here!” He holds out his hand and I drop the coin into his palm. His eyes turn into saucers. “Thank you, mzungu!” They all see the coin and they look at me and they start shouting, “Mzungu! Shilling! Mzungu!” They reach out for me, 12 dirty hands asking for my help, as the van speeds up.

 

I do them the courtesy of looking them all in the eyes as I slam the door in their faces.

 

I’m sorry. I can’t save you.

 

Tagged , , , , , , , , , , , , , , , , , , , , ,

First World Problems

Sometimes too many words are just too many words so I’m going to keep this one short.

While visiting Nicaragua I heard a man say, “If you can fix it with money, it’s not really a problem… if you can’t fix it with money, then it’s a problem.”

Really simple words that have stuck with me for the last six months and have given me a simple clarity to most of my everyday issues.  I hope you can take a moment to meditate on that phrase and then go have a GREAT WEEK!  See you next Monday!

<p><a href=”http://vimeo.com/101108613″>First World Problems</a> from <a href=”http://vimeo.com/user3183899″>John Brookbank</a> on <a href=”https://vimeo.com”>Vimeo</a&gt;.</p>

Tagged , , , , , , , , , , , , , , , , , , ,